Dr. Fleischman:So that's a very good question. Wear a mask doesn't help you that much, but it does help the community. Esther Schorr:Thank you. Thank you, Nick. And last but not least, we have Nick Napolitano, who is a PV patient, and an amazing advocate. NORD's Financial Assistance Program - The National Organization for Rare Disorders (NORD®) launched a COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare community affected by the COVID-19 pandemic. Polycythemia vera is a serious, but very rare blood disorder in children. Nice to see you, Dr. Fleischman. So I think that being a good example and wearing a mask, and if you politely suggesting that other people wear a mask, and when, you know, "Please for me. But stay cautious and stay hopeful. So what we need to do is look at in the setting of controlled clinical trials and see if these are truly beneficial or not. Dr. Scandura:None of them have PV, and none of them have COVID. I have a blood condition. While information is still coming in and what we all know continues to emerge, Dr. Scherber helpfully suggested that she could answer for the public some questions she has received from patients in her practice. My wife is home. The clots can decrease the blood supply to organs, tissues, and cells. But there are large efforts that allow us to move away from apocryphal stories. This can lead to strokes or tissue and organ damage. It is true that we know that some viral infections can be more frequent and/or more severe in those with MPN-- more in MF, somewhat more in PV, and less in ET. Esther Schorr:Okay. I would recommend calling your doctor’s office first. The increase in blood cells makes your blood thicker. We at MPNRF have been fielding many questions from the patient community about the Covid-19, or Coronavirus, situation. Esther Schorr:Okay. But for everything that we're talking about, we really do have to take things with a grain of salt that there's so much that we do not know about this disease, and we can really only base our discussions on the known biology of the disease, and what little we know about COVID thus far. Polycythemia Symptoms. Treatment focuses on reducing your amount of blood cells. Then the number of people in the ICU start dropping. Just because I know some people hear that and don't know what it is. Should they avoid foods with vitamin K or take supplement IP6? The local situation changes, and communication's the way to make sure everybody's getting the most appropriate care at the time for them and their individual disease. If I'm being honest, I'm still a little bit uncomfortable going to the hospital and just looking around and thinking I can get it any which way. For a while, we were pretty happy because we hadn't seen patients who had been treated with interferon get tested, but we did have a couple. So, Dr. Scandura, would PV patients necessarily have a worse outcome during their treatment for COVID? For those with jobs that may put them directly in touch with large groups of people such as those who work as a teacher, in healthcare, education, etc. So, let's start with Dr. Scandura. The first is Dr. Angela Fleischman, who's an Assistant Professor, Department of Medicine, Division of Hematology/Oncology at UC Irvine Health. En español | You likely know that certain chronic health conditions such as diabetes, heart disease and kidney ailments boost your risk of serious problems with COVID-19. It also can occur if your blood does not have enough liquid, or plasma. © Copyright 2021. These extra cells cause the blood to be thicker than normal, increasing the risk for blood … It was unique to PV. 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